Project ExPO-r-Net is a 3-year project that will build a European Reference Network for Paediatric Oncology to reduce inequalities in childhood cancer survival and healthcare capabilities across the EU.
Project ExPO-r-Net is a large multinational network with more than 60 collaborators from 17 European countries and is co-financed by the European Union. The project is coordinated by the St Anna Children’s Cancer Research Institute under the leadership of Prof Ruth Ladenstein and drives the successful implementation of a European Reference Network concept in the field of Paediatric Haemato-Oncology.
As all childhood cancers are rare, this network is in line with the EU Directive on patient rights to access cross-border healthcare (CBHC) in case of rare and complex diseases. ExPO-r-Net seeks to advance equal access to quality care, treatment and aims to improve patient outcomes across Europe through innovative solutions.
The introduction of a formalized CBHC advice through multidisciplinary virtual tumour boards and case consultation platforms will enhance knowledge sharing, enhance CBHC collaborations and will help to guide patient´s families in complex treatment plans based on experts group advice.
- ExPO-r-Net has established the following goals:
- Link paediatric oncology centres of excellence within Europe
- Enable treatment of young people with cancer in other EU Member States
- Improve access to high-quality health care for all young people with cancer
- Reduce inequalities in childhood cancer survival and healthcare capabilities across the EU
- Empower patients affected by complex or rare diseases across the EU
- Enable cost effectiveness in health care
“We are identifying the target groups who have conditions that require a particular concentration of resources or expertise, especially when the expertise with certain cancer conditions is rare and case volume low. ExPO-r-Net aims to reduce the current inequalities in childhood cancer survival and healthcare capabilities in different member states.” Prof. Dr. Ruth Ladenstein
Prof. Dr. Ruth Ladenstein, MBA, cPM
Professor of Paediatrics, Senior Consultant in Pediatric Oncology
Head of the Clinical Trials, Unit S2IRP (Studies & Statistics for Integrated Research and Projects)
Children´s Cancer Research Institute, St. Anna Kinderkrebsforschung